Research ethics boards need urgent training on Long COVID and myalgic encephalomyelitis - The Sick TimesLast year, researchers in Ontario, Canada started recruiting participants for a Long COVID trial testing the feasibility of exercise and rehabilitation. Like many other studies of exercise, it doesn’t use validated measures for post-exertional malaise (PEM). But the Pursuing Reduction in Fatigue After COVID-19 via Exercise and Rehabilitation (PREFACER) study, run by researchers at Western University, stands out because it involves deceiving participants — undermining informed consent and potenti Jun 02 26June 02, 2026Article at The Sick Times
Inside the black box reshaping Canada’s benefits systemUnderstand the impacts of how new AI tools are reshaping Canada’s benefits system on transparency and accountability for citizens. May 25 26May 25, 2026Article at Ricochet
Long COVID affects millions of children. The largest pediatric trial so far launches this year. - The Sick TimesOne NIH study will test low-dose naltrexone, while other upcoming trials will test larozitide and taurine. Feb 03 26February 03, 2026Article at The Sick Times
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick TimesAn analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to their trial registration, while a handful excluded participants who experience it. Nov 21 25November 21, 2025Article at The Sick Times
Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning” - The Sick TimesGuidelines recommend exercise and therapy as treatments, following attempted influence from Paul Garner. Jul 08 25July 08, 2025Article at The Sick Times
Why are there almost no clinical trials for kids with Long COVID? - The Sick TimesExperts who spoke with The Sick Times brought up many different reasons why developing new drugs for children with Long COVID has moved at such a glacial pace. Many pharmaceutical companies might not see Long COVID as profitable. And running trials in children is complex and expensive, as they can have different symptoms and underlying biological processes behind those symptoms from adults. “I want more clinical trials focused on cures and effective treatments. We want treatments that are actual Nov 19 24November 19, 2024Article at The Sick Times
Canadians with disabilities remain locked in ‘legislated poverty,’ and many want to dieMAiD’s expansion to include mental health may be on indefinite hold, but the government has still done nothing to help people live Jun 18 24June 18, 2024Article at Ricochet
Breathing room: Why parents and experts are calling for a clean-air revolution in schools | TVO TodayResearch shows there are simple interventions that could help protect students and staff from illness and other harms. Advocates say Ontario needs to do more. Jan 31 24January 31, 2024Article at TVO
Long Covid advocates face challenges, potential discrimination with billboard campaigns - The Sick TimesPeople with Long Covid in the U.S., Canada, U.K., and Europe are buying billboard ads to raise awareness about the disease and promote the urgent need for clinical trials. These billboards aim to do the job of public health authorities, advocates who spoke to The Sick Times explained. However, as some billboard efforts in the U.S. have run into roadblocks, legal experts say there’s a potential case that advocates may be experiencing discrimination under the Americans with Disabilities Act (ADA). Jan 09 24January 09, 2024Article at The Sick Times
Canada’s MAID policy is facilitating death by povertyA Vancouver woman says she will die imminently from an otherwise manageable illness Sep 28 23September 28, 2023Article at Ricochet
What long-COVID clinics can — and can’t — do for you | TVO TodayThousands of Ontarians are dealing with significant post-COVID symptoms and are desperate for answers. Where can they turn? Apr 27 23April 27, 2023Article at TVO